Child sitting in a mobility chair that has been donated to him.Disability

Vinnie James

Mobility and independence for toddler with Spinal Muscular Atrophy (SMA)

Two-year-old Vinnie James was diagnosed with type 1 Spinal Muscular Atrophy (SMA) at eight weeks old. SMA is a genetic disease, causing deterioration in nerve cells connecting the brain and spinal cord to the muscles. Type 1 is the most severe.

Vinnie’s family had been campaigning to raise money for a Permobil Koala Power chair to provide him with some mobility and independence. As his mother Kelly told us: “He currently has to stay where we put him. He’s a toddler. He should be running around causing mayhem but he’s not able to.”

The Axis Foundation initially agreed to donate £1,500 to cover the cost of the deposit for the chair. However – touched and impressed by further successful fundraising efforts by the family – the Foundation donated the final £6,000 needed to buy the chair. The family was also supported by chairman of local charity Heart of Darts Ian Waller.

“Without the help of the Axis Foundation and the donation they’ve made to the chair, we are unsure whether we would have got it. Moving forward, the chair will grow with Vinnie and ensure his mobility and independence – you have changed all of our lives” – Kelly, Vinny’s mother

The story continues…

Axis Operative Dan Ward (who was working near to Vinnie’s home on a routine job) noticed how Kelly and the family struggled to manoeuvre Vinnie’s previous chair through the front door of their property. So, he volunteered to fit and install a special door which was provided by supply chain partner Travis Perkins.

“The team at Axis saw what a struggle it was on a day to basis to get Vinnie in and out of our property. They came and fitted a specialist door that opens outwards making our life so much easier. This act of kindness is greatly appreciated by our family” – Kelly, Vinny’s mother

And, in 2020, the Axis Foundation donated a further £4,400 to fund a year’s physiotherapy with a Neuromuscular Physiotherapist for Vinnie.

“The money from The Axis foundation has ensured that Vinnie has access to the best possible physiotherapy. It means that we can continue working hard on making our little boy stronger and he can keep smashing SMA. Thank you” – Luke and Kelly James

 

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Two people playing Table Tennis at Pimlico Foundation youth projectDonations

Pimlico Foundation

Youth project activities reduce anti-social behaviour

The Pimlico Foundation runs after school clubs, one-on-one mentoring, detached youth work, sports and creative activities, all of which are designed to prevent anti-social behaviour and encourage community spirit.

The Axis Foundation donated £700 to the youth project to help them purchase equipment including board games and a table tennis set. This donation means that there is a wider range of activities available at the weekly youth club. These sessions provide the young people who attend with a safe and relaxed space where they can interact with each other and engage with informal learning which serves to enhance their social and personal development.

“We’d like to thank the Axis Foundation for their gift of a donation. It has enabled us to purchase a table tennis set and board games and these are perfect ways to encourage the young people who visit us to interact with each other. The donation has added to our youth work and we appreciate the support as it’s something that the children are really benefiting from” – Mark Liburd, Senior Youth Worker

More About The Pimlico Foundation

The Pimlico Foundation works with young people to create a hub which provides physical, emotional and spiritual support, helping them to reach their full potential. The charity holds a weekly ‘hot chocolate outreach’ which reaches around 100 people. Attendees receive free hot chocolate and get the chance to speak to the youth workers from the charity about local events and help to shape the community.

The youth project operates under the youth movement Outbreak, which aims to create a cohesive community and help young people from disadvantaged backgrounds living in Pimlico

 

 

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