Girl on Scooter for MS SufferersCare

Mobility Scooters for MS sufferers

Buying mobility scooters for MS sufferers.

A good friend spotted that MS sufferer Alice Tilley would benefit from a mobility scooter. She applied to the Axis Foundation for help on her friend’s behalf.

About Alice

Alice Tilley, 28, has an aggressive form of relapse and remitting MS. When she has a relapse Alice is unable to walk unaided. She cannot drive and is totally reliant on her parents to get her around.

Applying for a friend

Claire, Alice’s friend, also suffers from MS.

After she applied to us, the Axis Foundation bought a lightweight mobility scooter for Claire. And so Claire applied for one for her friend Alice too.

“I have limited mobility and the mobility scooter that the Axis Foundation purchased for me gave me a huge amount of independence. A mobility scooter will help Alice too,” says Claire.

Thanks from Alice

And the Axis Foundation was delighted to help Claire’s friend.

Thanking us for our donation of £2,175 Alice said: “I was able to choose the world’s lightest mobility scooter which I can pack into our car. This is going to make such a difference to my independence and the management of my mobility. Thank you Axis Foundation.”

READ MORE
funding physiotherapy for Kasia's babyCare

Funding physiotherapy for baby Antoni

Foundation funds physiotherapy to help baby meet developmental targets after diagnosis of neurological cyst.

Kasia Ulanowska gave birth to her long-awaited son Antoni in week 35 of an extremely difficult pregnancy, complicated by multiple medical emergencies.

Antoni was born tiny, weighing only 1.7kg (3.7lbs). He was rushed to intensive care and spent a month in hospital before he could come home.

Kasia was concerned about Antoni’s physical development. And a diagnosis of a neurological cyst, a brain abnormality which causes hypertonia (increased muscle tone) put him at a very high risk of abnormal development and developmental delay.

Ruth Bayliss, Highly Specialist Paediatric Physiotherapist and Clinical Director of The Children’s Physio LTD, recommended early intervention and regular physiotherapy treatment saying:

“His current physical presentation can be significantly improved with the help of physiotherapy.”

Long waiting times in the NHS forced Kasia to consider private physiotherapy. So, she asked the Axis Foundation for help to fund the treatment.

The Trustees of the Axis Foundation were delighted to help Kasia. They agreed to fund 18 months physiotherapy treatment donating £5474.

Antoni’s physiotherapist reports: “Antoni has done incredibly well over the last year and continues to respond to physiotherapy well and meet his developmental targets.”

Kasia says: “Knowing that we can help him catch up but not being able to afford was just heart breaking. We had not even dreamed about half what we have been donated, we will be forever grateful.”

READ MORE
Gift boxes for seriously ill children in hospitalCare

Tyler’s Trust

The Axis Foundation’s award of £1,500 to Tyler’s Trust bought gifts and equipment for seriously-ill children in hospital.

And our donation gave this charity gave even greater help than we anticipated during COVID-19.

Their Funding Support Officer, Juliet Stallard, explains how our donation helped them give a little bit extra to local children and their families during the pandemic.

“We would like to say a huge thank you to the Axis Foundation. You kindly donated £1,500 to Tyler’s Trust in 2019 towards essential equipment to support seriously-ill children in hospital. The equipment, DVDs and TVs you provided helped children in 2019. And when COVID hit in 2020, many of the children had to lock down in hospital. So the extra provisions you helped us with helped those children in local hospitals who were unable to get out of bed.

“It’s been an unprecedented year for us all. We have strived to support our families with sick and ill children through this year in as many ways as was possible.

“In May, we started to deliver our support boxes by post and hand deliver at a social distance to those that we could reach. These were specifically to help with mental stimulation activities (for the children) and hygiene and self-care packs (for all the family) in COVID lockdown. We have also supported new families with our core service support packs, gift boxes and support to local hospitals’ children’s wards (parental pack for overnight stays). We reached over 30 families.”

In 2020 the Axis Foundation made a further award to Tyler’s Trust, purchasing I-pads and tablets to help seriously-ill children in hospital.

More about Tyler’s Trust

Young Tyler underwent extensive surgery and radio therapy following a diagnosis of a brain tumour. During his long time in care, the thoughtful 12-year-old bought two young fellow patients a comic and a toy.

Their delighted reaction inspired Tyler. So, in 2014, he founded the charity Tyler’s Trust giving a Gift Box to patients who have been diagnosed with a brain tumour or are suffering from a life threatening condition.

Each box contains cheering gifts including a teddy, a bandana, a mug, pens, sweets and a voucher.

A local charity, supporting local children, West Sussex-based Tyler’s Trust, also supports siblings and family members at a time when hope is often lost or fading. As a twin Tyler knows how hard it can be for brothers and sisters of sick children. And, as well as giving gift boxes to family members, Tyler’s Trust also provides additional backup including through an annual family support day.

Tyler has been nominated for several awards in recognition of his courage. In 2018, he received a British Empire Medal (BEM) in the Queen’s Birthday Honours List for his work. He says that his greatest achievement is the creation of Tyler’s Trust, whose patron is TV and radio presenter Fearne Cotton.

There’s more about Tyler’s Trust here

 

READ MORE
Warehouse full of Christmas gifts for children living in povertydisadvantaged

Newham Christmas Toy Appeal

Helping local families living in poverty. Foundation donates £1,000 to the Newham Christmas Toy Appeal buying Christmas gifts and hampers

2020 was a difficult and challenging year for everyone because of COVID-19.

And, for those living in poverty, based in temporary accommodation, who may have behavioural difficulties and be the victims of abuse, Christmas might have been just another miserable day. For some children there would be no family lunch round the table with crackers. No gifts. Not even a stocking.

Our donation

Our donation of £1,000 to Ambition Aspire Achieve’s (AAA) Newham Christmas Toy Appeal helped buy gifts to help fill the Christmas stockings of 3,000 children living in poverty in Newham as well as hampers for 100 families. These children and families are neighbours to all at Axis who work in the HQ in Stratford.

Thank you on behalf of children living in poverty

Kevin Jenkins, OBE, Co-Ordinator of the Newham Christmas Toy Appeal, said:

“Thank you for making this difference for our area’s most disadvantaged, vulnerable and at-risk children, especially in this the most difficult and challenging of all years.

“As all the available evidence confirms, it is the poorest families already in need who have suffered the most, and many other families, through no fault of their own, have been pushed into poverty as a result of the hardship and loss caused by the COVID-19 pandemic.

“I write on behalf of the Newham Christmas Toy Appeal to thank the Axis Foundation for your wonderful support, which was truly appreciated.

The appeal provided: 2891 children with a Christmas stocking for Christmas morning – helping more children than ever before; 100 families (approx. 300 children) with a seasonal food hamper.

With my sincere thanks, 2891 times over.”

What the families said

“I need a card that gives you a big hug to show my gratitude for the lovely presents for the children. I have not worked for a while and worried as I don’t have money to spend on Christmas gifts and then the surprise made a huge difference!” – Parent with a disabled child

“I am so grateful to you and your team for all these gifts and the way you have supported my family. I am not working and not getting any benefits. We are spending my savings from my business before I became unwell. I would not have been able to buy anything for my girls but because of you, our Christmas is a happy one” – Parent

“I have struggled with my mental health this year and to be honest I don’t think I have thought about Christmas or presents. To receive this I am very grateful and it has made me very emotional that people are still looking out for each other. It has uplifted me” – Parent

“A massive thank you for our delivery of food and toys today. The children were so so happy and it cheered us all up after a hard week. My eldest said he was close to tears at how nice it was that someone would do that for us. Thank you so much to you and your team and anyone who donated. It really has helped make our Christmas. I hadn’t been able to get dessert or gravy for our Christmas Dinner because we have been isolating and I’m so pleased that we can now have some of the lovely things in the hamper” –  Grateful Parent

Why we support Newham’s Ambition Aspire Achieve

Axis’ HQ is in Stratford, East London, in the borough of Newham. Ambition Aspire Achieve is a Newham-based charity supporting disadvantaged, vulnerable and at-risk local children and families all year round.

The Axis Foundation supports small, local and impactful causes. So, in response a direct appeal from AAA to John Hayes (CEO, Founder and Trustee of the Axis Foundation) the Axis Foundation made a Christmas donation to AAA.

More about AAA here

 

READ MORE
canoes and kayaks on river helping disabled young people enjoy paddlesportsDisability

Basingstoke and Deane Canoe Club

We fund hoist to help young disabled young people get in and out of canoes and kayaks.

Basingstoke and Deane Canoe Club, based on the Basingstoke Canal, provides safe paddlesport activities for disabled young people. Paddlesport activities include recreational kayaking and canoeing.

The Axis Foundation’s donation of £2,000 helps buy them a mobile mechanical hoist. This will help paddlers with physical disabilities (in particular wheelchair users) to get on to the water. They can then take part in kayaking and canoeing activities on the canal.

“We are passionate about being able to provide kayaking and canoeing activities to people who would not otherwise be able to participate in paddlesports. The hoist will assist getting paddlers with impaired mobility in and out of kayaks and canoes” – Janella Mansell, Paddlesport Officer

The hoist will help young disabled people from Trealors College, a local school and college for disabled young people. Students currently have to use a swimming pool because of the height of the banks at the club house, Odiham Wharf, Colt Hill in Odiham, Hampshire.

The benefits of paddlesports include independence and better physical and mental wellbeing.

More about Basingstoke and Deane Canoe Club

Basingstoke and Deane Canoe Club is a charity run by volunteers.  The Club is affiliated to British Canoeing. Their specialist coaches are trained and experienced in kayaking with disabled people. They run courses throughout the year, regular taster sessions over the summer and have regular club nights. And, they reach out to their local community offering bespoke taster sessions to youth groups and other voluntary organisations.

More here http://www.badpaddlers@org

READ MORE
helping children with autism, child with headphones in front of screenDisability

Time4Autism

Axis Foundation’s donation helps children with autism improve their motor and cognitive abilities.

Time4Autism is run by parents and volunteers to provide activities for children with autism. These activities, which include yoga, drumming and trampoline, help children develop their motor and cognitive abilities.

The Axis Foundation’s donation of £600 buys a Soundsory headset. This is a multi-sensory programme of music (processed with neuro-acoustic modifications) and movement-based exercises, designed to help children with autism improve their motor and cognitive abilities.

Time4Autism will lend the Soundsory system to families within their local community in Milton Keynes so they can help their children at home. This is especially vital when face to face sessions are impossible due to COVID-19 restrictions.

Thank you for the generous gift to Time4Autism! We are so happy to have your support. Through your donation, we can continue working towards supporting children with Autism. Your donation is going toward providing headsets for children with sound sensitivities and sensory problems. You have helped us to lend the system to families, so they can help their children at home. This is especially vital when face-to-face sessions are impossible due to COVID-19 restrictions. Thank you again!” – Jabeen Salam, Treasurer

More about Time4Autism

The charity helps parents and carers to understand their child’s sensory needs and behaviours and supports them in dealing with challenging behaviours.

The Soundsory programme which we have donated also helps children and adults with motor delays, balance and coordination issues, sensory and auditory processing disorders, ADD and ADHD as well as whose on the autism spectrum and with developmental issues.

READ MORE
Young disadvantaged children sailingCare

The Ahoy Centre

Our donation to The AHOY Centre supports vulnerable children

The Axis Foundation donated £3,750 to The AHOY Centre’s Time2Talk programme. Time2Talk provides 1-2-1 emotional and psychological support for vulnerable children.

Many children at AHOY come from chaotic home-lives, with little guidance. And these Time2Talk 1-2-1 sessions improve teamwork, self-esteem and leaderships skills.

“On behalf of everyone at AHOY, thank you for believing in our work and helping us to continue to have a real positive impact on people’s lives.

“We have now added our mentoring Time2Talk services to all our main programmes. We will continue to embed this vital piece of support into all additional programmes.

“During the period of your grant, The Time2Talk programme was led by AHOY’s Lead Mentor and qualified Psychologist who worked with a team of qualified mentors. The mentors were also instructors on the activity programme.

“They provided emotional and psychological support to our vulnerable children whilst delivering “on the job” mentoring. And they could recognise any behavioural changes and react appropriately during sessions to support them”  – Danny O’Sullivan, Fundraising Manager

More about Ahoy

The AHOY Centre is based in Deptford, one of London’s most deprived areas. The charity enables disadvantaged and disabled young people to take part in water-based activities and train in life skills.

And there’s more about  AHOY here!

Lockdown update

During Lockdown, AHOY’s virtual hub provided online cooking, nautical theory, drama and fitness sessions for members. And AHOY also cooked and delivered over 1,600 hot meals for vulnerable families. Plus, they provided Covid Capsule activity packs to keep members progressing and engaged.

“As parents of an adult with autism and a learning disability, Lockdown was extremely difficult for us as a family. We were very concerned about T’s mental health. All his activities stopped and his normal routines ended. So we were immensely grateful to AHOY for keeping in touch with the Sailability students and for all the effort that went into reopening the centre” – AHOY parent

READ MORE
Mum holding baby, CASPA parents of children with autismCare

CASPA

Our donation to CASPA funds Support Group for parents and carers of children with autism

Children on the Autistic Spectrum Parent’s Association (CASPA), based in Bromley, Kent, works with around 270 autistic individuals every week. The charity helps build their confidence, sense of self-worth and social and practical skills.

And, as Helen Dyer, Director of CASPA, says: “Parents of children with autism often feel that they are fighting a constant battle. As much as children need a break and understanding, which CASPA provides, parents do too.”

So, our donation of £2,300 will fund a support group based in Orpington, Kent for 100+ parents/carers. They meet and talk, hear and share stories of achievements and struggles. And here they can also discuss ways in which they can help their child with the support of CASPA professionals.

“Just being able to share stories, cry and laugh with other parents/carers in the same situation enables our group members to feel less isolated and ostracised. As they tell us, these groups provide a lifeline when things as an Autism parent get tough.

“This funding is hugely needed and appreciated. It will enable us to keep doing what we do best – providing direct support! Thank you Axis Foundation” – Helen Dyer, Director of CASPA

A CASPA parent says

“The support group has been a lifeline for some of us. It’s a safe place for us to talk and to be able to exchange information on various subjects such as schools, behaviour tips and just to ‘offload’. CASPA goes above and beyond to support our children and our families. This service has definitely saved my sanity on many occasions over the years! We love CASPA!”

More about CASPA

Many autistic people become socially isolated. So they miss out on educational, social and employment opportunities. CASPA runs a wide range of programmes for children, young people and adults on the autism spectrum encouraging them to participate in variety of positive activities. These activities develop social and communication skills and provide learning opportunities, fostering independent living and employment skills.

During lockdown CASPA took their parent support groups online to continue supporting families.

More here http://www.caspabromley.org.uk

 

READ MORE
Man and wheelbarrow standing in front of polytunnelCare

Green Health

Our donation to Green Health Thames Valley (GHTV) supports people with mental health difficulties

 

Green Health Thames Valley (GHTV) helps people with mental health difficulties through horticulture-based programmes and activities.

The Axis Foundation’s donation of £4,450 purchased a polytunnel, raised beds and green roofs for the sheds for their community garden in Whitley. 

“We are thrilled with the support from the Axis Foundation. Our new polytunnel is fantastic. It enables us to extend our growing season and provide warm dry space for clients. We have installed new raised beds and have finalised designs for a new green roof which will be created very soon. It’s so exciting seeing these improvements. Thank you to all at Axis Foundation. Your support means so much to us all at GHTV” – Richard Byard, Chair of GHTV

More about Green Health

The horticultural programmes at Reading-based Green Health help marginalised and isolated clients. Here they can engage with nature, create projects and participate in physical activities. They can also socialise with other clients and locally-based volunteers. As a result, they become more confident, less socially isolated and develop new skills that move them closer to economic activity and independence.

In addition to helping people with their mental health, GHTV also aims to protect physical health through encouraging  horticulture-related physical activity and promoting healthy eating.

The charity additionally aims to improve the places and spaces of their local communities.

Find out more about the work of Green Health Thames Valley here.

READ MORE
Collage showing massage and two women in a bus one in yellow vest, one in bright scarf SEDSCare

Sussex Ehlers-Danlos Syndromes and Hypermobility Support (SEDS)

Our donation to Sussex Ehlers-Danlos Syndromes and Hypermobility Support (SEDS) helps people with Ehlers-Danlos Syndromes (EDS). EDS is closely related to Hypermobility Spectrum Disorder (HSD).

Pilates, hydrotherapy, osteopathy, acupuncture, physio and massage all help people with EDS/HSD by strengthening and relaxing muscles.

And our donation of £3,000 will fund some of these activities which are offered by SEDS’ Hypermobility-aware specialised practitioners, either 1-2-1 or in specialised groups.

“We are very grateful to the Axis Foundation for their donation. The feedback we are getting from those people with EDS/HSD who have participated in physical activities is amazing. In the longer term we believe that sufferers can sometimes learn to improve – or at least maintain – their own physical health. This might mean less reliance on the NHS from damage they can inadvertently inflict on their bodies. It can also improve their mental well-being” – Jane Green, Founder and Chair of SEDS

More about EDS/HSD

EDS/HSD is a multi-systemic disorder for which there is no care pathway. The condition affects connective tissues throughout the body. Common symptoms include: dislocations, pain, Chronic Fatigue syndrome/ME, allergies, fibromyalgia pain, gastro-intestinal problems, anxiety, heart issues plus other associations. The condition is life limiting: many people with EDS/HSD lose careers, colleagues, friends and hobbies.

More about SEDS

SEDS advocates actively for members locally in Sussex and also for their families, friends and carers. The charity also works with other organisations to improve awareness and create a care pathway. During COVID-19 the charity conducted successful online EDS/HSD specialised Pilates classes.

Mental health support

Persistent and acute pain affect mental health whilst fatigue adds to the isolation many sufferers experience. SEDS provides further direct support for members with their mental health.

Pictured:  SEDS event day helping members gain confidence and to access travelling; 1:1 Covid-safe deep tissue massage helping muscle spasms rigidity.

Read more here about their work here.

READ MORE