Axis Foundation funds Neuromuscular Physiotherapist for baby Vinnie
Vinnie James was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 at nine weeks old.
The progressive disease affects motor functions including the muscles used for swallowing and breathing. SMA Type 1 normally sees children passing away from respiratory failure before the age of two.
Vinnie, now five years old (in 2020), has been on a new drug called Spinraza for over four years. He is slowly starting to gain more physical strength.
Parents Luke and Kelly work daily with him at home and at school. The are ensuring that he is building new muscle strength to complement the medicine. They use specialist equipment and have the help of a Neuromuscular Physiotherapist.
The Axis Foundation has previously donated £6,000 to purchase a Permobil Koala Power chair to provide Vinnie with some mobility and independence. The latest donation of £4,400 funds a year’s physiotherapy with a Neuromuscular Physiotherapist for Vinnie.
“The money from The Axis foundation has ensured that Vinnie has access to the best possible physiotherapy. It means that we can continue working hard on making our little boy stronger and he can keep smashing SMA. Thank you” – Luke and Kelly James