Little Harry’s illness limits his mobility; to help him see more of the world, his parents can purchase a specialist car seat thanks to our donation.

At 13 months, genetic tests diagnosed Harry Smith with 1p36 Deletion Syndrome. This chromosome deficiency affects Harry’s growth, development, speech, hearing, sight, mobility, digestion and motor skills.

Harry’s grandparents set up the ‘Harrison Smith Future Care Fund’ to provide for his future care and Harry’s family and friends host fundraising events including a Valentine’s Day ball which raised £10,000.

Harry’s family also applied to the Axis Foundation for £500 Axis Foundation to purchase a specialist car seat, which we were delighted to grant.

The new, lightweight car seat provides added comfort and support through extra-firm armrests. Most importantly, it has a padded swivel base which makes transferring Harry from his wheelchair into the car a much easier process.

“Before we had the new seat it was difficult to transfer Harry without making him feel uncomfortable and hurting our backs leaning into the car” explained Jenny, Harry’s mum.

“We would just like to thank you for donating Harry’s new specialist car seat. It swivels so Harry can be lifted into the car so much easier and is so much more comfortable for him. It will last for a very long time as there is lots of room in it for Harry to grow.”