autism Archives - Axis Foundation

Opportunity for Bespoke Care for Charles

December 19, 2023By Axis Foundation

Private autism assessment and chance for bespoke care

The Trustees of the Axis Foundation were delighted to donate £1,000 to help Luke Comb acquire a private assessment for his son Charles, who is showing clear signs of autism. A private autism assessment opens up opportunities for bespoke care.

“The rewards will be endless, the impact huge and life changing. Thank you” – Luke Comb

More about Luke and Charles

Luke desperately wanted a speedy assessment for his son Charles who was showing signs of autism. Getting Charles the right diagnosis early means he can be given the support he needs and opens up opportunities including access to special development programmes and bespoke care.

But waiting lists are long and family financial resources limited. So Charles applied to our Foundation for support.

In Luke’s words: “Charles is showing clear signs of autism. He is non-verbal and struggles in many everyday settings including with danger awareness and interaction. Professionals believe he is Autistic but cannot assess him for some time, possibly a couple of years. During this time, he won’t have full support or access to programmes that would benefit him.

“I believe this age is the crucial time to have him in the correct setting with access to purpose-built programmes for his development that will benefit him all through life. We believe, once fully diagnosed, he will have full support at an early stage when it is most needed.”

Donations

Chance for a Future for Esmay

December 19, 2023By Axis Foundation

Chance for education – and a future – for Esmay

Following young Esmay’s diagnoses of autism, dyslexia and Sensory Processing Disorder (SPD), and her mother’s application to the Axis Foundation, the Trustees agreed to donate £870 to fund a private Occupational Therapy (OT) referral to progress Esmay’s Educational Health Care Plan (EHCP) submission.

The long-term impact of our donation will be Esmay’s successful secondary education providing her with options for a future career.

“We literally can’t thank you enough, it is going to make such an impact for us. Without her EHCP in place, moving to further education will be a difficult transition for Esmay and she will struggle whilst waiting for an OT assessment” – Zarah, Esmay’s mother

Donations

Friends of West Wimbledon Trust

July 26, 2022By Axis Foundation

We help design library space for reading and storytelling

Friends of West Wimbledon Trust (FOWW) want to create a new, inclusive, child-friendly library space that will inspire a love of reading and storytelling.

When the Friends applied to the Axis Foundation for help, we were delighted to donate £1,000 to the project.

“We can’t thank the Axis Foundation enough for donating £1000 towards our library project. The transformation of the previously outdated space into an inviting, resource-based library for children to read, research and socialise, will be hugely appreciated by the children and staff. Thanks to the Axis Foundation, generous supporters within our school community and running various events, we are thrilled to announce that we have raised enough for the project to go ahead this summer! We can’t wait to share pictures once the new library is finished in September” – Susan Edwards, fundraiser, FOWW

The Axis Foundation’s grant will support the re-design of the library space as well as purchase flexi-bookcases, a picturebook unit, hideyhole seat, picturebook tunnel, reading den and tent as well as comfortable seating and storage areas.

The newly designed space will feature cosy areas for quiet reading, a variety of soft seating and Me-To-You display boards for book recommendations. The furniture will create defined fiction, non-fiction, and picture book areas. The shelving and the furniture ensure books face out to encourage children to choose books independently and so broaden their reading choices.

Diverse users of West Wimbledon Primary School’s (WWPS) library space include children with autism. Within the Autism Base at the school, the pupils all have specific needs: the new contemplative and calm environment will specifically help them to engage with their reading.

More about FOWW

FOWW is a charity run by the parents and supported by the teachers, staff and governors of West Wimbledon Primary School in the London Borough of Merton. More here

Care

Little Heroes

March 7, 2022By Axis Foundation

Helping children and families affected by Autistic Spectrum Disorder (ASD).

The Axis Foundation donated £1,200 to help Little Heroes develop their monthly girls club sessions for parents and children. The charity helps families and children affected by ASD.

“This is fantastic news – thank you so much. The funds will really help to be able to make something more meaningful and help the children benefit to the full potential” – Kim Drake, Co-Founder

More about Little Heroes ASD Support Group

Official diagnosis of ASD can take a long time (sometime up to three years). Based in Southend on Sea, Essex, Little Heroes supports families when they need it most: as soon as they discover their child’s needs. They provide support, information, opportunities for respite, social activities and networking opportunities. They also hold weekly drop-in sessions and also organise social activities in the school holidays.

There’s more about Little Heroes here

Disability

Perkisound

March 7, 2022By Axis Foundation

Providing recreation and music for people on the autistic spectrum

Perkisound is a recreation centre which is particularly suitable for people on the autistic spectrum. Their outstanding music garden features bright and colourful tubular bells, cowbells, conga drums and a giant marimba.

The Axis Foundation donated £3,000 to help purchase a Duo Metallophone for the musical garden. A metallophone is like a xylophone, but with metal bars instead of wood. Up to four people can play and enjoy playing the Duo. Since its installation in March 2022 the Duo has become one of Perkisound’s most popular pieces.

“We are so grateful for this donation from the Axis Foundation. The Duo Metallophone is a stunning piece and has really completed the outdoor music area. We believe this is now the best outdoor music garden in the UK. Families and specialised settings really benefit from outdoor activities within this safe environment and we look forward to welcoming 1000s of visitors over the year, enjoying exclusive use of the site, improving skills and enjoying safe recreation time” – Susie Perkins, Co Founder

Second donation

In 2023, the Trustees of the Axis Foundation agreed to a further donation to Perkisound. Our new award of £3,000 will provide handmade interior woodwork (planters, benches and tables) for The Butterfly Barn at Perkisound.

The Butterfly Barn is a new polytunnel, and, featuring nany colourful flowers and plants, will be home to many butterflies.and will provide a sensorily stimulating, educational and therapeutic experience for visitors to Perkisound. It is scheduled to open in 2024. The Butterfly has been selected as a symbol by some autism organisations as It inspires thoughts of change from chrysalis to butterfly, and represents the beauty of diversity and continued development.

More About Perkisound

Tim and Susie Perkins founded Perkisound in 2017. They are both professional musicians and teachers. And they were inspired to start up the centre by their autistic son who is now a teenager who plays piano every day.

Situated in a semi-rural 2.5 acre site, close to Birmingham, Coventry and Nuneaton, Perkisound aims to promote general health and wellbeing, improve choice of leisure activity, reduce stress and loneliness and increase social networking for carers and families with additional needs. It currently supports 2,800 people. Their only requirement is that one member of the family or group booking a session here has additional needs.

More here

helping children with autism, child with headphones in front of screen

Disability

Time4Autism

December 9, 2020By Axis Foundation

Helping children with autism improve motor and cognitive abilities

Time4Autism is run by parents and volunteers to provide activities for children with autism. These activities, which include yoga, drumming and trampoline, help children develop their motor and cognitive abilities.

The Axis Foundation’s donation of £600 buys a Soundsory headset. This is a multi-sensory programme of music (processed with neuro-acoustic modifications) and movement-based exercises, designed to help children with autism improve their motor and cognitive abilities.

Time4Autism will lend the Soundsory system to families within their local community in Milton Keynes so they can help their children at home. This is especially vital when face to face sessions are impossible due to COVID-19 restrictions.

Thank you for the generous gift to Time4Autism! We are so happy to have your support. Through your donation, we can continue working towards supporting children with Autism. Your donation is going toward providing headsets for children with sound sensitivities and sensory problems. You have helped us to lend the system to families, so they can help their children at home. This is especially vital when face-to-face sessions are impossible due to COVID-19 restrictions. Thank you again!” – Jabeen Salam, Treasurer

More about Time4Autism

The charity helps parents and carers to understand their child’s sensory needs and behaviours and supports them in dealing with challenging behaviours.

The Soundsory programme which we have donated also helps children and adults with motor delays, balance and coordination issues, sensory and auditory processing disorders, ADD and ADHD as well as whose on the autism spectrum and with developmental issues.

Care

CASPA

October 22, 2020By Axis Foundation

Support Group for parents and carers of children with autism

Children on the Autistic Spectrum Parent’s Association (CASPA), based in Bromley, Kent, works with around 270 autistic individuals every week. The charity helps build their confidence, sense of self-worth and social and practical skills.

And, as Helen Dyer, Director of CASPA, says: “Parents of children with autism often feel that they are fighting a constant battle. As much as children need a break and understanding, which CASPA provides, parents do too.”

So, our donation of £2,300 will fund a support group based in Orpington, Kent for 100+ parents/carers. They meet and talk, hear and share stories of achievements and struggles. And here they can also discuss ways in which they can help their child with the support of CASPA professionals.

“Just being able to share stories, cry and laugh with other parents/carers in the same situation enables our group members to feel less isolated and ostracised. As they tell us, these groups provide a lifeline when things as an Autism parent get tough.

“This funding is hugely needed and appreciated. It will enable us to keep doing what we do best – providing direct support! Thank you Axis Foundation” – Helen Dyer, Director of CASPA

A CASPA parent says

“The support group has been a lifeline for some of us. It’s a safe place for us to talk and to be able to exchange information on various subjects such as schools, behaviour tips and just to ‘offload’. CASPA goes above and beyond to support our children and our families. This service has definitely saved my sanity on many occasions over the years! We love CASPA!”

More about CASPA

Many autistic people become socially isolated. So they miss out on educational, social and employment opportunities. CASPA runs a wide range of programmes for children, young people and adults on the autism spectrum encouraging them to participate in variety of positive activities. These activities develop social and communication skills and provide learning opportunities, fostering independent living and employment skills.

During lockdown CASPA took their parent support groups online to continue supporting families.